I get it, not everyone wants to be an advocate for their condition.
I won’t lie.
It doesn’t pay. . . much, if at all.
And it’s emotionally and physically draining.
BUT, what I will say, is that it is the most rewarding thing I’ve ever done in my whole entire life.
I recently wrote this post about why I’m a National Psoriasis Foundation Ambassador and why you should be too.
Patient expert Julie Cerrone reflects on how she got her start with the National Psoriasis Foundation, and how advocacy can shape one’s life.
This article is important to me because I feel like others should know why I support the NPF as much as I do. They’re a great organization and truly out for Patients. There are some foundations out there that don’t always have the patient’s best interest at heart (*cough* Koman *cough*)
If you want to be an advocate, there are so many places that you can start. But here are two articles, written by two of my top advocate friends that I think are tremendous resources.
Calling all advocates! Here are the best ways to fight on behalf of your condition.
The WEGO Health team gets a lot of emails from patients and caregivers wondering where to start in order to become a great patient leader and how to get more involved with WEGO Health. We’ve created this guide to help those of you just starting your patient leader journey to get the most out of your…
Check them out and then let me know what you think of them!
Wishing You A Pain Free Day!