Categories
It's Just A Bad Day Regenexx

Regenexx PRP | Meniscus, Knee Stability + ACL

For those who may not know, I had a Regenexx stem cell procedure for my avascular necrosis in 2015. I then had a Regenexx PRP procedure in 2016 to help the breakdown of my joint from my arthritis.

These procedures are the reason I can walk today.

And I don’t say that lightly at all.

Before my procedure, I was on crutches for 3.5 years. I was in constant pain, my bone was crumbling, and I could not function. 

By tapping into the power of my own body, I was able to revitalize and regrow bone in my femur and help stabilize my knee. Since then, I have sung the praises of these Regenexx procedures from every mountaintop I can.

Fast forward a few years, my husband Josh was having problems walking. He was in so much pain, and I could tell he was at his witts end because he asked me what he should do.

After going to the VA hospital (he’s a retired army vet) to get an MRI and to see the VA orthopedic, we found that he had two meniscal tears – one on both sides of his meniscus. But other than that, his knee looked in relatively good shape—minor arthritis, but nothing else that might be causing him problems.

Years prior, my hubby had ACL surgeries on both of his knees. He’s always complained to me that his knee feels unstable and aches all the time. His regular doctor told him there wasn’t much to do and to try some therapy.

But I knew there was a better way 😉

Enter: Regenexx.

I called Regenexx Pittsburgh while we were still at the VA and got him an appointment. After a great consultation with Dr. Lieber, he believed his knee wasn’t ‘bad’ enough for stem cells, but he could benefit from PRP. He said that treating his meniscus, ligaments, and tendons with PRP will help to stabilize his knee and tremendously help him with his pain.

What is PRP?

If you don’t know PRP, let me break it down for you (courtesy of the Regenexx website).

PRP stands for platelet-rich plasma, which is created by taking blood and concentrating the platelets in plasma. Why do this? The platelets in your blood are responsible for clotting. They also have growth factors in them which help stimulate repair of the damaged tissue.

What are growth factors? Think of growth factors like espresso shots for local repair cells. They stimulate other cells to do more work and can even call the needed repair cells to the area.

Regenexx Pittsburgh – What is PRP

Platelet Rich Plasma (PRP) and Platelet Lysate are Platelet procedures that contain healing growth factors from your own blood that promote your body’s natural ability to repair itself. . . Platelet injections have a stimulating effect on the repair cells within the targeted area, making those cells work harder to perform their natural job of healing the body.

Regenexx-SCP Procedures

PRP Procedure

Josh and I arrived at Regenexx Pittsburgh at 10 am on the day of the procedure. After we checked in, Josh had to sign up for the registry – an essential part of the process. Regenexx collects data from their patients so that they can track progress, side effects, etc. (7 years later, I still get a questionnaire to fill out, and I do it every March!)

Everyone who works there is the nicest person you’ll ever meet. As Josh had 35 vials of blood drawn, we enjoyed talking and getting to know the tech who helped through Josh’s procedure!

Once all the vials were filled, we left while Josh’s blood was spun down to isolate his platelets. We went to Oakmont Bakery to pick up some goodies for the kids, Target for a quick Valentine’s day run, and then Eat n Park for the soup and salad bar before returning.

At 1 pm, they were ready for the platelets to be reinjected into Josh’s knee! Our initial consult was with Dr. Lieber, but Dr. Sally was the doctor who could see Josh the fastest. From personal experience, I know that all 3 Regenexx Pittsburgh doctors are FANTASTIC, so I was happy to be able to see as many as we could 🙂

First, he went back and got x-rays done. Those x-rays were broadcast during the procedure so the doctor could see what he was working to correct.

Once the x-rays were complete, I could come back and watch the reinjection. Using an ultrasound machine, Dr. Sally guided his needle into the places that needed some love.

When Josh received his ACL surgery years ago, they took part of his patellar tendon and grafted it to his ACL. Because of this, it’s caused a ton of instability and weakness in his patellar tendon. Whenever the doc went to inject it, he said he could tell it really needed some extra attention.

As he worked through Josh’s knee, he validated much of the pain he was experiencing. The VA doctor wasn’t wrong when we told him he had two meniscal tears. But upon exploring, Dr. Sally believes that the pain was coming from the tendons and ligaments around Josh’s knee – which ultimately caused the tears because everything was unstable.

He mentioned that when he does the meniscus injections, it causes a lot of discomfort. Ultimately, he ended up not filling in the meniscus because he genuinely felt that treating everything around it would help resolve Josh’s pain and didn’t want to irritate it further.

Did you know that meniscal tears are super common after the age of 40? He said most people have them from the wear and tear of life. Therefore, you don’t HAVE to fill them in or get them fixed to resolve your pain. A lot of times, the pain comes from other sources.  – Fun fact I learned during the procedure

Regenexx Pittsburgh offers pronox (aka laughing gas) if you want it. Josh decided to turn it down. He said he was worried I’d post him saying something stupid and didn’t want to take the risk 😑

During his procedure, he was definitely in discomfort, but he kept saying he was doing alright. Right up until the last injection, he said his pain was ok. But once the doc finished the last one, he said his pain started to skyrocket. When he walked out of the room, his pain was about 8.

It said it was hard to walk on his knee because it felt full and uncomfortable as he hobbled out to the car. As we drove home, he said his pain escalated to a 9-10. In my mind, I felt like this was a good thing because whatever Dr. Sally did obviously had hit what was causing him the most pain.

Once he got home, he said his pain started to plateau for the rest of the night. But that’s not to say the rest of the night was pain-free. Dr. Sally had mentioned that he could expect 2-3 days of joint pain and that tonight might be difficult to sleep because it would be uncomfortable – which is exactly what Josh experienced.

When I had my procedure, my knee swelled up SO big after the procedure. I remember my Dad worrying that we had made a mistake by doing it.

But this is what is supposed to happen!!

The area is causing an inflammatory reaction, and the platelets are now going into their new location to see how they can help to heal. During the first month post-procedure, you must avoid anti-inflammatories (like ibuprofen, naproxen, etc.) and ice. You don’t want to take or use anything that might start to decrease that inflammatory response.

What’s Next?

Next, we focus on healing and rehabbing his knee!

After about 2-3 days, Josh’s knee should start to feel back to how he felt walking into the office that day. He will begin wearing a brace on his knee two days out, which he should wear for the next month to help keep stability in his knee while it heals. And towards the end of the first week, he can begin going to physical therapy.

Procedures like this won’t show immediate results, but within 6-8 weeks, he should start seeing less pain, fewer flare-ups, and notice improvement.

Knowing from personal experience how well this can work, I’m so excited for him to start realizing the relief he can have from tapping into his body’s healing power.

Categories
AVN Regenexx

3 Year Regenexx Update

To catch up on my whole Avascular Necrosis + Regenexx journey, click here and peruse all of the posts.

I’ve been blogging my entire journey in hopes that it will help others make informed decisions about their AVN treatment. I searched for answers and was on crutches for 3.5 years before I found the solution to my avascular necrosis. My hope is that you don’t have to go through the same pain and agony I did. You’re NOT alone and there ARE options out there.


Well, it’s October and I’m finally getting to posting this video.

My 3 year anniversary was back in March and it’s taken me 7 months to get this up and out the door.

HOW SAD IS THAT?!?! 

I do have a good excuse though (It’s at least a super cute excuse!). . . The week of my 3 year anniversary I was enjoying my week old baby girl!

You’d think that SOME TIME within the last 7 month period I could have found time to post. . . but I’ll be honest, between being ridiculously busy and exhausted it just dropped further and further on my list. (I mean, I did record this video in September if that counts for something 😉 haha!)

But, let’s change that with this post and get my 3-year update out there for the interwebs to read about.

 

3 Years Later, How’s It Going?

Back when I was on crutches (ahhh, seems so long ago now), I used to think about what would happen when I’d get married and want to have a baby.

Would I have to crutch down the aisle to meet my future husband?

Would I have a big ol’ belly, hobbling around while pregnant on crutches?

Well, 3 years after having my Regenexx procedure I can proudly tell you that I got MARRIED and had a BABY WITHOUT CRUTCHES!!

My husband and I got married before he left for his deployment and are planning to have our church validation ceremony and reception this coming January. So, I DIDN’T walk down the aisle yet without crutches – but I can tell you with complete certainty that on January 5th, 2019 when I do walk down the aisle I will be tearing up because 1) it’s my wedding and 2) I’ll be WALKING myself.

Also, I think it’s important to note that during my pregnancy I gained 30 pounds and that extra weight didn’t seem to affect my knee at all. That was one of my worries – that the added weight would cause problems. But it didn’t seem to bother it at all!

 

 

My 3 takeaways from this year’s update video are:

 

I’m So ThankFul

I’m so incredibly thankful for this procedure. Regenexx has changed my life and got me back to walking and being an active human being! The pain is gone, my knee is stable and strong and I go throughout my days walking without a second thought.

 

Go Get A Consult! (Do it. . . SERIOUSLY DO IT)

If you’re reading or watching my experience and considering learning more about the procedure – DO IT. Go to one of the doctors and have a consult. What do you have to lose?! Before you decide on your course of action, I truly believe it’s in your best interest to explore all of your options. What I love about the Regenexx practitioners that I’ve been in contact with is that they’re REALISTIC. They’ll tell you straight up if they think you’ll be a great candidate or not. Way back when they told me that I had a 50% chance of success and look at me now!

 

I Love Connecting With You All

I’m so sorry I suck at responding to your messages in a timely manner. I have to be honest – I ABSOLUTELY LOVE LOVE LOVE when people reach out to me asking questions and getting my thoughts on their situation. Connecting with others is exactly why I started my blog years ago so that others can know that they’re not alone. That said, I do have to be honest and say I’m not exactly the best at responding quickly. Between working full-time, my health and now being a wife and mom, there can be a delay. BUT, PLEASE still reach out to me. I WILL respond – I promise!

 

So to sign off, as I do in my video, I’d love you to know that I’m living my life, loving my life, and I’m so thankful!

 

Wishing You A Pain Free Day!

Julie Cerrone Croner, Certified Holistic Health Coach, Yoga Instructor, Patient Empowerer, Autoimmune Warrior (Psoriatic Arthritis), Avascular Necrosis, Complex Regional Pain Syndrome | itsjustabadday.com

 

 

 

 

 

 

 



Procedure:

Want to know how I found the procedure? There’s a post for that 😉

Day 1: Did you miss my previous post about my prolotherapy injections? Catch up here!

Day 2 & 3: Want to know more about when I had my blood drawn for my injections? Read this one!

Day 4 – 7: Interested in how the procedure went? Click here!

Day 8: Want to read about the last day of the whole process and my journey home? This is the post for you!


Recovery Posts:

Month 1: 5 tips from my post 1 month Regenexx recovery right here 😉

Month 2: In my 2 month follow up, I talk about 3 noticeable differences I’d identified!

Month 3: 3 month follow up and 3 things I’m grateful for.

Month 4: 4 months post Regenexx I’ve been caught saying ‘this is the first time in a long time’ A LOT!

Month 5: 10 NEW things I did 5 months post Regenexx!!

Month 6 & 7: MRI update on how things are regenerating and how I’m doing without my biologic Humira

Month 8 & 9: Spent 3 Christmases on crutches and it feels DAMN GOOD to be crutchless this year!

Month 10 & 11: Back to living a normal life & celebrating things I haven’t done in YEARS!

One Year: One year celebration and update on getting a platelets treatment for a different problem!

One Year + 6 Months: I traveled to the NIH to speak at an FDA hearing regarding regulations and guidelines on stem cells. Watch my testimony!

Two Years: Celebrating 2 years of a mobile and pain-free life!

Three Years: This update might have been super late (it’s more like my 3.5 year update), but it’s because I’ve been LIVING MY LIFE!

Categories
Autoimmune AVN It's Just A Bad Day Personal Victories PsA Regenexx Travel

5 Take Aways From Conquering Personal Challenges

Traveling has always been one of my favorite things to do.

Ever since I was young, I’ve always enjoyed seeing new places, cultures, and things. From exploring America, laying on the beaches of the Caribbean, safari-ing (is that even a word?) through the African bush, riding camels on a Tunisian beach with Arabic speaking natives, eating my way through Europe or whatever other trips I can find myself on – I’ve always had a wander lustful heart. I always tried to soak up every moment and never knowingly took the situations for granted.

Having my mobility taken away from me for 3.5 years made me look at things in a different light.

When it first all happened, I had panic attacks so bad I didn’t want to travel. Actually, a trip that I took with my family to Florida in the Summer of 2013 ended up being one of the major points during my healing journey – but I didn’t want to go. I just wanted to lay in bed, not leaving my house, and do nothing.

It was during that trip I had the realization that I still could live an awesome life – despite any obstacle that was presented in my way.

Obstacle: Psoriatic arthritis?

Solution: Pacing myself and planning ahead.

 

Obstacle: Avascular Necrosis (aka why I was on crutches)?

Solution: Planning ahead, renting wheelchairs, and asking for help

 

The first few trips I took were sobering. I didn’t have the stamina that I had before (my 2012 flare up + disability leave) and had to rest a lot.

I remember going on a trip with my boyfriend at the time and I so badly wanted to keep up with him and his sister’s family. I was in a lot of pain, tired, and would call it a day fairly early. I had never been like that and it was something I wasn’t used to while traveling. That trip, albeit a great one, was a wake-up call to me that things may never be as they were before.

As the years went on, I got more comfortable with traveling. (I’ve detailed some of those trips – like this one comparing trips to San Fransisco and this one about a trip to NYC)

I had my airport routine down pat. (READ: Traveling with disabilities lesson’s learned)

I’d have someone drop me off, I’d check my bag so I wouldn’t have to worry about it, get a wheelchair and be wheeled straight to my gate. Someone would help me on the flight, they’d pick me up at my destination and then either take me to my next flight or take me to baggage claim to get my bag. Once I had my bag, I’d either get them to help me in a cab or go rent a car.

After a while, this routine seemed perfectly normal. To me, dragging my bag behind my crutches didn’t seem like such a big deal at all! I still didn’t have the stamina to walk around or be as active as I’d like – but at least I was confident in going places myself.

When I went out to Colorado to have my stem cell procedure done, I was so bummed because the atmosphere out there was SO active. I wanted to go hiking or biking or walk up to see beautiful views on the top of mountains. And to an extent, I did! I crutched over little rocks and wiggled my way to the top of more easily accessible viewpoints. And it was beautiful! I told myself that I’d be back and next time I’d be back to do all the active activities.

Since my stem cell procedure, I’ve gone on many trips. Mostly for work or advocacy things, but sneaking in a vacation here or there (like this one). But during my trips, I still paced myself. I didn’t walk as much as I wanted to and made sure to take care of me. It was always at the top of my mind.

But at the end of May/beginning of June 2017, my family went on the trip of a lifetime – 12 days to explore 3 of the 8 Hawaiian islands.

 

We made it to Hawaii 🙂 #FamilyVacation

 

Up to this point, every trip I had gone on I’d have a twinge of fear that I wouldn’t be able to keep up or do the things I wanted to. But to be honest, that thought never crossed my mind going to Hawaii. I was so excited to see everything.

Every day for 2 months prior, I rode my desk bike hoping to build up my stamina to hike and see all the things I wanted to see. I knew I’d have to build myself up and then make sure to take care of myself when I was there.

My sister and I planned to make sure we had the right food to eat, I brought my Deep Blue, extra supplements and I brought pain pills just in case.

In Hawaii, we hiked up Diamond Head on Oahu, we hiked Waipi’o Valley (which is insane fyi), we hiked to see waterfalls, botanical gardens and more on the Big Island and in Maui, we hiked on the Road to Hana.

To a normally active person, these hikes may not have been a big deal.

But to me, they were hugeThis trip was the most active I’ve been in 5 years.

I remember the first time I walked on the beach after my stem cell procedure (read about it here) and to be hiking around Hawaii 2 years later was so amazing.

The significance of what I was doing was never lost on me the entire time we were there.

 

I swear the whole trip I just kept saying thank you, mahalo, thank you, mahalo, over and over and over again in my head.

I tried to soak up every moment that I could.

At the end of the day, there are a few things I’d like to leave my chronically fabulous friends with as takeaways from my health journey (thus far):

 

5 take aways from Conquering personal challenges - itsjustabadday.com Overcoming psoriatic arthritis challenges and obstacles on vacation

1) Just because you can’t do something now, doesn’t mean you won’t ever be able to do it again. 

As life goes on, our plans and goals adjust. The way we’re able to function and do things may need to be altered, but that doesn’t mean we can’t find SOME way to enjoy the things we used to love to do. Maybe it’s not today, but if it’s important to you, you can always find a way. If there’s a will, there’s a way.

 

2) Pace yourself and listen to your body.

I’m extremely fortunate to be able to walk again. I realize that some are not as lucky as I have been. But, just because I can walk doesn’t mean I can do ANYTHING I want. I still have to modify, I still have to pace myself. Sure, I hiked around the island, but I definitely had pain in the evenings. I doubled my turmeric every day and, eventually, I did end up taking pain pills in the evenings towards the end of the trip. It was a way for me to still enjoy everything I wanted to. There were a few times that I wanted to hike further, but I didn’t. (ok, so my parents forced me not too – but they were right and I was being stupid) We can still enjoy things, but need to PACE.

 

3) Plan ahead.

My sister and I always have to be careful of what we eat. So planning ahead, bringing food and knowing where I could go and get diet approved foods was really key for me. It helped me not stress out about it and made me feel comfortable.

 

4) Don’t be afraid to ask for help or support.

If you need help in the airport – ask for it! If you need to park in the handicap spot – don’t feel guilty! If you have to call it a night early, don’t feel bad doing so. You have to take care of you, first. Don’t worry about what others think – they don’t have to live in your body. YOU DO. Ask for help and take it.

 

5) Enjoy every little moment.

We take so much for granted. Things we wish we could do often cloud our minds. Instead, we need to focus on the things we CAN do and the things we’re grateful for. Make sure to remember this and try not to dwell on what’s lost or what can’t be. Focus on the here and now and what you can do. Embrace every moment the best you can.

 

RIP Pill-box 🙁

During the trip, I did leave something behind though that I am a little sad about.

I’ve had the same pill-box for the last 5 years. It’s seen me through some pretty rough times and it’s helped hold my supplements to get me better. The little compartments have been falling apart and I knew I needed to get a new one. Since we were going to be gone for 2 weeks, I knew I had to get another box anyway. I bought a new one, filled them both up and took them both to Hawaii. Once I took all the pills in my old one, I left it behind.

It’s weird, but I felt a little sad doing so because that pill-box has been a part of my health journey. BUT, if I had to leave it behind, it was a great place to do so. In a place that I had the opportunity to be active in!

All in all, this trip was the best trip I’ve ever taken in my life.

Mahalo to my parents, Mahalo to my body, Mahalo to life.

 

 

The amazing sites we saw, the experiences we had and the personal obstacles I overcame . . . this trip will be EXTREMELY hard to beat!

Have you gone on a vacation, or had an experience, where you overcame personal obstacles as well? I’d love to hear about them! Post about it in the comments below👇👇👇

Wishing You A Pain Free Day!

Julie Cerrone, Certified Holistic Health Coach, Yoga Instructor, Patient Empowerer, Autoimmune Warrior (Psoriatic Arthritis), Avascular Necrosis, Complex Regional Pain Syndrome | itsjustabadday.com

 

 

 

 

 

 

 

 

Categories
AVN Regenexx Regenexx

2 Year Post Regenexx Update

To catch up on my whole Avascular Necrosis + Regenexx journey, click here and peruse all of the posts.

I’ve been blogging my entire journey in hopes that it will help others make informed decisions about their AVN treatment. I searched for answers and was on crutches for 3.5 years before I found the solution to my avascular necrosis. My hope is that you don’t have to go through the same pain and agony I did. You’re NOT alone and there ARE options out there.


WHERE DOES TIME GO?!

Seriously. Where has the time gone? 2 years?! It’s been 2 YEARS ALREADY?!

I can’t even wrap my brain around that one. Wow.

Going from wondering what will happen before my stem cell injection, high up in the Rockies . . .

 

To seeing 60% Bone regrowth at 1 year out. (Read the whole post here) . . . 

 

Avascular Necrosis Femur Bone Progress Healing with Stem Cells

 

To walking, having no pain, and thriving every day!

 

My Regenxx experience and recovery have been nothing short of AMAZING.

In honor of my 2nd anniversary, check out my video and how I’m doing these days!

 

Fun fact – I still have my crutches out next to my bed. It may be weird and strange, but it feels comforting to me to see them and see how far I’ve come. I’ve risen above my challenges and now use them to help empower others. Who knows if I’ll ever need them again. It’s more than likely I probably will need them at some point with my psoriatic arthritis, but I have no idea what the future will bring.

Will I have AVN problems again? Will I have to go down the same road again? What does the future hold for my health?

Only God knows.

But one thing I DO know is that if something like that happens again, I have a plan. I know that I must empower myself to seek out the best information and best care that I can.

In the moment, 3.5 years seemed like eternity. BUT, looking back, I realized it was necessary. If I hadn’t had the time to calm my body, had the time to go on a healing journey and to really change a lot in my life – who knows if the procedure would have worked as well?

My sights are set on the present moment and living it the best I can.

Expecting and celebrating the miracles that happen EVERY SINGLE DAY.

Big ones, small ones. They occur all the time.

We just need to be open and mindful of them. Give thanks and honor them as they come.

Regenexx helped me by physically taking my stem cells and injecting them into my body, but I have to give myself a lot of credit too. Lifestyle changes, mental state, honoring myself – this all played a HUGE part in my recovery. There are NO quick fixes in health. We must be committed to ourselves to change and seek out our best lives.

That’s what I’ve done and my hope is for you to do the same.

Whether it’s through Regenexx or any other means. You deserve to live your best life – don’t allow any obstacle to stop you.

Never stop searching for answers.

Never stop looking for solutions.

And NEVER EVER EVER EVER EVERRRRR GIVE UP.

I’ve been asked NUMEROUS times about my Expect Miracles shirt and where I got it. A few years back, I bought it at an event in Pittsburgh yoga event. If you’re interested in it, click here for the original one that I have!

I do love this shirt and wanted to make a few changes to it. So I created a new version that includes “They happen every day” text on the back. The thing about miracles is that they happen SO often. Every single day we experience them, so we really do need to just expect them.

“Expect Miracles” has been a slogan of mine for a few years now. I have it written all over my life – including my computer monitor screen! Seeing that it’s an important mantra in my life, it made perfect sense to create a Teespring campaign in honor of my 2nd anniversary.

If you’re interested in purchasing one of my “Expect Miracles. They happen every day.” adorable tanks, check out my Teespring campaign currently running!

https://teespring.com/expectMiracles

Who know’s what the next year will bring, but I’m WALKING into my 3rd-year post-Regenexx excited, happy, full of life and PAIN FREE.

Looking for my 3 year update? I was a bit late in posting it, so it’s more like 3.5 year update, click here here to view!

 

Wishing You A Pain Free Day!

Julie Cerrone, Certified Holistic Health Coach, Yoga Instructor, Patient Empowerer, Autoimmune Warrior (Psoriatic Arthritis), Avascular Necrosis, Complex Regional Pain Syndrome | itsjustabadday.com

 

 

 

 

 

 

 

 

 

10 Ways I Got Ready For My Stem Cell Regenexx Procedure for AVN/ON of my Femur. Avascular Necrosis / Osteonecrosis | It's Just A Bad Day | AVN Knee, Psoriatic Arthritis, Complex Regional Pain Syndrome

Looking for more Regenexx related posts?

Procedure:

Want to know how I found the procedure? There’s a post for that 😉

Day 1: Did you miss my previous post about my prolotherapy injections? Catch up here!

Day 2 & 3: Want to know more about when I had my blood drawn for my injections? Read this one!

Day 4 – 7: Interested in how the procedure went? Click here!

Day 8: Want to read about the last day of the whole process and my journey home? This is the post for you!

Monthly Recovery Posts:

Month 1: 5 tips from my post 1 month Regenexx recovery right here 😉

Month 2: In my 2 month follow up, I talk about 3 noticeable differences I’d identified!

Month 3: 3 month follow up and 3 things I’m grateful for.

Month 4: 4 months post Regenexx I’ve been caught saying ‘this is the first time in a long time’ A LOT!

Month 5: 10 NEW things I did 5 months post Regenexx!!

Month 6 & 7: MRI update on how things are regenerating and how I’m doing without my biologic Humira

Month 8 & 9: Spent 3 Christmases on crutches and it feels DAMN GOOD to be crutchless this year!

Month 10 & 11: Back to living a normal life & celebrating things I haven’t done in YEARS!

One Year: One year celebration and update on getting a platelets treatment for a different problem!

One Year + 6 Months: I traveled to the NIH to speak at an FDA hearing regarding regulations and guidelines on stem cells. Watch my testimony!

Two Years: Celebrating 2 years of a mobile and pain-free life!

Categories
Autoimmune AVN Favorite Activities FDA It's Just A Bad Day Medical Conference Medical Vents Personal Victories Pittsburgh PsA Regenexx Stanford Medx Travel Wego Health Yoga Yoga

2016: A Fantastic Year In Review

This year has been an interesting year.

I’ve had some really high highs, and then I’ve had some struggles along the way. But, when you really put it all into perspective, this year was fantastic.

I became a God Mother, I experimented with raw vegan, I spent quality time with family, saw the Pens win the Stanley Cup, celebrated 1 year post Regenexx and had a PRP treatment on my knee, went zip lining for the first time and made so many amazing memories.

At the end of last year, I wrote a post about my emotions and how I was feeling as 2015 came to an end. {Click here to read it!} Per my post, I was: scared, nervous, excited and freaking out. Which, sounds about right.

2015 had been a GREAT year, full of HUGE successes – like getting off of crutches and all pain meds.

And I was scared. I can’t lie and say I wasn’t nervous about what my new-found successes would bring me. People think it’s crazy to be afraid of successes. But, your nerves can act up a lot- even when you’re excited and unsure of how things will go in a positive light.

The biggest change I knew 2016 would bring me was getting back to work. And boy did this year deliver. Not even just on the working front, but it brought me some really awesome opportunities that I would NEVER have had otherwise.

2016 got me back to living my new normal.

I have to pace myself, I have to make modifications, I don’t have a day off from my chronic condition. But that doesn’t matter. In the long run, I can still have a kick-ass, wonderful life!

Even though I have a new normal, I started to fall into old Julie patterns. (Which, was something I was DEFINITELY afraid of at the end of 2015)

In true Julie fashion, I started to overload my plate.

For 3.5 years, I spent the majority of my time focused on ME. Sure, I was definitely the busiest person you’d meet on disability, but I ALWAYS made my health a priority. 2016 started off the same way. I focused on my health and didn’t make sacrifices. But then the opportunities kept coming. And coming. And coming. And coming. (I feel like I shouldn’t even be allowed to complain about that!!)

And, of course, I kept saying yes and yes and yes. I soon found myself in the exact same position I had been in prior to disability. Overwhelmed and trying to do everything.

It was very frustrating to me because as soon as I had the opportunity to implement all the tools I had be picking up the last few years, I reverted back into old patterns. Just goes to show, it’s a constant battle. You always have to choose putting yourself and health first – no matter what.

This fall was the busiest I’ve ever been, hands down. From Labor Day until the second week of January 2017 I’ve had something going on. It’s been nuts! I wish I could be a bear and hibernate for January and February!

I think the biggest challenges I faced in 2016 were

  1. My Hands
  2. My inability to say NO

Which, if you think about it, I’m SURE overloading myself and trying to take on the world aided #1.

But, in the end, I’m eternally grateful for 2016. For all of the amazing opportunities, all of the successes, all of the wins and all of the challenges. I did a hell of a lot of things this year that I would have NEVER had the opportunity to do had I not been on disability the last few years.

Facebook reminded me the other day of this post.

screen-shot-2016-12-28-at-5-23-31-pm

It made me think back to that day. Although I don’t remember that day specifically, I remember that time period.

I was in so much pain and so inflamed. No one had any idea what was going on with me. And really I had no idea what lay ahead of me.

But now, a few years later, and a little bit wiser (I’d like to think), I can see that it was all for naught. I learned very valuable lessons the last few years and I really do feel blessed and honored.

There always is the plan. There always is. And where did that plan take me in 2016?

Here are some of the highlights of 2016:

Speaking Engagements

ePharma Summit 2016

I kicked off 2016 by speaking at the ePharma Summit with a distinguished panel of Patient Leaders. Casey Quinlan,  Randi Oster, myself and Jack Barrette spoke to 600 of our closest pharma marketing friends about what patients really think when it comes to pharma ads on TV. My friend Tiffany put together these 2 great storifies – Check them out: Part 1 & Part 2.

 

Farm To Table

Focusing in on the fact that food is medicine, I gave an Elimination Diet presentation at the Pittsburgh Farm To Table 2016. An Elimination Diet is extremely important for helping heal your body and can help you identify triggers which are exacerbating your symptoms! Learn more about my Elimination Diet eCourse here.

 

FDA

I had the chance to attend an FDA hearing on stem cells this year. Here’s a write-up of my whole experience and a video of my testimony. It was pretty cool to be in a room with top thought leaders in the stem cell space. It also made me realize that there was a lot I did not know about stem cells. But, I am an expert in my story, and that’s why I was there. To convey my personal stem cell experience.

 

Stanford Medicine X

Having the chance to speak at Stanford Medicine X was pretty surreal. I had attended the conference in 2014, but in 2015 had not been selected as an epatient scholar. This year, I refused to miss it again and submitted two different speaker abstracts To my surprise, both speaker abstracts were accepted! Not only did I get to go to the conference this year, but I gave 2 different talks!

I gave an oral ignite talk on how social media and patient advocates online helped me regrow my femur bone. Eventually, the video should be up online. As soon as it is, I’ll be sure to post it!

And the second presentation was a breakout session on how I used my own data to create a personalized medicine treatment plan for my psoriatic arthritis. It was amazing to not only present what I had done, but to then have top doctors, leaders and scientists ask ME questions. What should they tell their patients? What did I think about X, Y & Z. It was pretty freaking awesome, to be honest. Definitely in the top 10 moments of my life.

 

Fearless Warrior Yoga Conference

Having the honor to present at the Fearless Warrior Yoga Conference helped round out my year by allowing me to talk about another passion of mine! During my talk, we did a meditation and talked about tools to help you identify what is holding you back. It was the first time I was in front of an audience in yoga pants instead of being dressed up. It was great!

 

NYC Medicine X Pop-up

As if the two speaking opportunities at Stanford MedX weren’t enough this year, I had the honor of being asked to give my ignite speech again at a pop-up event in NYC. I gave the same talk I did at Stanford (about social media and regrowing my femur bone), but this time to a completely different audience in an awesome space at Parson’s School Of Design.

 

Events

FDA – Psoriasis

I had the opportunity to attend an FDA meeting, with the National Psoriasis Foundation, focused on psoriasis. The FDA hosts patient focused meetings and have been having such success with them. Click here to read a little bit more about it and to hear my public comment.

 

HealtheVoices

This year I was able to attend the Health eVoices conference and had an amazing time. The previous year, I had been unable to make it as my friend Amy had gotten married that weekend. All my friends raved about the event and I knew I had to get my butt there this year. Click here to read my post all about it.

And, I’m very excited to announce, that I am on the advisory board for 2017 Health eVoices. Make sure to keep your eyes out for applications which should be available in the new year!

 

ACR

This year I helped with the International Foundation of Autoimmune Arthritis ACT program. A Community Team (ACT): Redefining Research is a 2015 Celgene Innovation Impact Award: Unleashing the Patient Voice in Research WINNING project was designed to address the need to incorporate the patient voice in early drug development discussions so that better outcomes could be reached.  The ‘team’ has three key players:  Patients, Researchers, and Industry (companies who manufacture treatments). This project aims to expand communications between the players so that we can help streamline research processes, improve outcomes, and make better use of research dollars. I had the opportunity to be a moderator during the online research groups and then I was able to represent the patient voice at the American College of Rheumatology conference this year. At the ACR, we interviewed researchers on Facebook Live. It was so much fun! Learn more about the project here and watch the facebook live videos here!

 

Pharma Events

I had several opportunities this year to work with different pharma companies. From sitting on virtual ad boards, to participating in interviews, to flying up to NYC to participate in World Psoriasis Day. Each of them were sponsored by different companies but aimed to help patients as their end goal. Many do not like working with pharma, but I do encounter amazing individuals working at these companies. They really are trying to help make a difference – whether most patients believe it or not!

 

Work

This year I started back to work after having been on disability for three and a half years. I first started working for HealthCentral – writing psoriatic arthritis posts each month and managing co-managing their Psoriasis HealthCentral Facebook page.

I graduated with my 200-hour yoga teacher training certification in November 2015 and had been teaching community classes around the area. But, this year I picked up teaching yoga twice a week at Cool Springs in Bethel Park, PA.

Shortly after, I started working with Rehabilitation And Pain Specialists, to help promote more patient testimonials and to get their social media sites up and running. They conduct Regenexx procedures, the same as I had done for my knee!

The last few years I’ve become obsessed with the idea of raising the patient voice and making a different in the healthcare landscape. So I was MORE THAN EXCITED to start working at WEGO Health. I feel like it takes all of the skills that I have acquired over my life thus far and allows me to put them into play. AND I get to work with the most amazing and inspiring patient leaders that there are out there. I’m very excited and humbled every day to work with them!

During the year I’ve participated on many Advisory Panels, written for other publications and have signed up to be the 5th blogger on LEO Pharma’s PsoStrong. And don’t forget my blog! Sure, this year has seen fewer blog posts than the previous 3 years (I blame my hands!), but I still was able to accomplish a lot. Like my 5 part series on managing my psoriatic arthritis (click here to start at part 1), to the release of my Elimination Diet eCourse last January and my Chronically Grateful ebook in the spring.

 

I feel extremely blessed and am incredibly grateful for the last year.

I can’t wait to see where 2017 takes me – onwards and upwards from here!!!

Where has your journey taken you this year? Make sure to comment below!

 

Wishing You A Pain Free Day!

Julie Cerrone | Spoonie, Autoimmune Warrior, Certified Holistic Health Coach, DoTerra Wellness Advocate, 200 RYT Trainee, Reiki 1, Nutrition Geek, ePatient Advocate, IT Consultant, Pittsburgh Based Practitioner Living the Chronic Life

 

 

Categories
AVN Regenexx Regenexx

FDA Stem Cell Hearing

(Impatient and don’t want to read the whole post? Just scroll all the way to the bottom to watch the video!)

Sometimes I find myself in situations and think, “How the hell did you get here Julie?”

Seriously. I mean, to be speaking at an FDA hearing on stem cells? And then I think . . .“Only me, only me.”

But then I look around the room and realize it’s not just me.

I’m not the only person that wants to make a difference in this world for patients. There are so many others just like me! I’m one of many. I’m just working as hard as I can to help move forward a patient centered healthcare.

I had the opportunity to very briefly give a highlight of my stem cell journey Center for Biologics Evaluation and Research, Food and Drug Administration hearing in September 2016.

Preparing For The Day

In the Spring of 2016, I attended an FDA meeting specifically for psoriatic disease. It was held at the FDA campus in Maryland. I found it really interesting and I loved being there. I wasn’t one of the featured speakers at the psoriasis event, but me being me, I knew I couldn’t let the opportunity to speak at an FDA meeting pass me by. So I luckily grabbed the last public comment spot and was able to still make a comment during the meeting. Want to watch it? Check out the video here.

Julie Croner, It’s Just A Bad Day, Not A Bad Life

Yup. THIS right here. Speaking at an FDA meeting . . . Today was the HIGHLIGHT of ALL my advocacy work. https://twitter.com/psasummer/status/710558544291110912

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When I saw there was going to be an FDA public hearing on stem cells, I knew I needed to share my story. I inquired for a speaking spot and really hoped that I would get one.

Originally the hearing had been set for April 2016, but due to an overwhelming response to come and testify, the date had been postponed and expanded to 2 days. They also held a workshop the week prior to the hearing.

In the summer, I was notified that I had been selected as a speaker and was assigned speaker #59. I was told I had 5 minutes and I had to stick to the allotted time slot because there were so many individuals speaking during the two days.

This trip was going to be all on my own dime. But, because I felt so strongly about it, I knew I had to be there in person. It had taken me years to find a solution to my problem and I believe that is unacceptable. Procedures and treatments like this need to be readily available for all patients to tap into.

Before hand, I made note cards, outlined what I was going to say, and practiced multiple times. Each time it came out a little bit differently.

And I’ll be honest. . . I didn’t know the best way to present at an FDA hearing. But, what I did know, is that I wanted to speak from the heart.

I know my story so well. I didn’t need to do research or write down facts to make sure they were right. I just knew I needed to get up there and be as authentic as I could. And that’s what I planned to do.

I prayed for guidance. I prayed that whatever would come out of my mouth that day would be exactly what the hearing committee needed to hear to move forward with regulations in favor of all patients.

 

Getting To The Hearing

My best friend just moved to the DC area and was nice enough to let me stay at her beautiful home. I’ll be honest, I look for any excuse to go and visit her and her family!

The hearing took place on September 12th and 13th, 2016. The morning of the second day, I drove to the National Institutes for Health (NIH) campus. Having gone to the FDA campus earlier that year, I figured I would need to go through a metal detector, but I did not anticipate what was going to happen at the NIH.

I pulled up and they had me pull into this little garage. The woman then instructed me to take all of my bags out of my car. Now let me tell you this: I had just driven 4 1/2 hours to my friend’s house to stay, and then drove up to the NIH building, and was planning on driving back home afterwards.

So I had luggage, I had my computer bag, I had a cooler, I had 2 purses, I had my yoga bag, and then all of the other crap that I keep in my car. Yep, all of that had to go through the scanner. I probably looked ridiculous carrying 25 different bags.

The bags and I moved into a small room, passed through the metal detector and then I was able to walk back out to my car.

In the meantime, my car was inspected. The hood was opened and the handles were swabbed. There was a bomb sniffing dog and they looked through my car.

The staff actually made it pretty seamless – the whole thing probably took about seven minutes. Which, to be honest, could’ve taken a lot longer.

Once myself, my bags and my car passed inspection, I was given a badge and a little paper to show that I went through the security. A nice man highlighted a map for me so that I knew how to get to building 10. And then I was on my way!

As I started driving through the NIH campus, I stopped to admire the beauty of it. It really is a nice campus. It reminded me of a college campus, except everyone was walking to work instead of class. The buildings? Some newer, some older. And I noticed quite a bit of construction going on. All in all, I was impressed with the beauty of it.

I found building 10, after eight stop signs (thanks to the security man who told me to count them), got to the parking garage, parked my car, walked in the building and found my way to the auditorium. I checked in, got my speaker badge, and they took me to my seat. The day started within two minutes of me sitting in my seat! It was pretty much perfect timing.

 

The Main Event

The hearing had actually started the day before and they were continuing with different foundations and nonprofits speakers. I would have really liked to have attended the first day, but with my travel schedule that week (I was already missing work to go to Stanford Medicine X) I knew I couldn’t miss another day.

As I watched the foundations speak, I realized that everyone was reading off a paper script. They had written out exactly what they were going to say and were reading right from it.

There was one woman who really impacted the audience. Shelley Ross, the president of the Cure Alliance, talked about her own personal experience with stem cells and how it helped get her back to living her life. (Click here to watch her presentation)

I’ll be honest, there were many things that these presenters were saying that went completely over my head. I feel like I have the basic understanding of this treatment, but I will not sit here and pretend I know all the ins and outs.

There was a break after the first set of speakers and then I was shortly up next!

The first man in our group did not show. I figured that time would be running late, but we actually went ahead of schedule.

As I sat in my seat, I started to get very nervous. I felt like I was going to get up there and not remember everything I had wanted to say. I knew I had notes on my note cards, but for some reason I felt like I was going to get up there, start looking at their faces and never look down at the note cards.

But before I went up to the podium, I looked down at my phone and it was 11:11.

If you’ve followed my story, you may realize that I always credit my Pap Pap for helping me find this procedure. It was the summer that he was dying of lung cancer that he promised me as soon as he got to heaven he was going to find me a solution.

A week or two after he passed away, I came across the Regenexx procedure.

You may believe, or you may not believe, but I truly believe that he has been by my side ever since. I’ve never felt so connected and so close to someone who wasn’t physically in my presence.

Once I looked down at my phone, and saw that he was with me, I knew it was going to be all right. I knew everything that I was going to say would have an impact.

I wanted to speak from my heart and that’s what I definitely did. I got up there, never looked at my note cards and tried my best to wrap it up within my 5 minutes.

Of course I always over analyze everything I say and don’t say. There were things that I forgot to mention and there were definitely facts I wish I would have honed a bit more on. But, overall, I felt like I made an impact.

(Keep scrolling down to watch my testimony or click here)

 

The Aftermath

After my short presentation, the rest of the speakers went and then we had a break for lunch.

During the break, many people came up to me and thanked me for standing up and sharing my story. Several of them mentioned it was a “breath of fresh air” and broke up the monotonous tone of everyone reading from their papers.

The feedback I received made me realize I had definitely made an impact on the room. I ended up leaving with a stack of business cards!

Many speakers had specific points related to the draft guidance that they were seeking comments on. I’ll be honest, my five-minute speech did not address specifically what they outlined.

And I did that on purpose.

I’m not going to pretend to know everything there is about stem cells. I’m not going to pretend to know what should be regulated and what the guidelines should or shouldn’t be.

But what I do know is that I’m an expert in my own story. And by telling my story, and why I chose Regenexx (because I was weary of other stem cell procedures  and I wanted the ability to use my own stem cells), I knew that I could have some kind of impact on pushing regulations forward.

Julie Croner, It’s Just A Bad Day, Not A Bad Life

Sharing a few more pictures from my day so far at National Institutes of Health (NIH) at the FDA/CBER Part 15 Public Hearing. My mom sent me the pic of her taking a break at work to watch the live…

Who can say the impact my testimony truly had, but I’ll tell you this.

I don’t feel like I went through all of this for no reason. I feel like I went through all of this because there is a bigger purpose. And if I can use that experience to help just one patient out there, then having gone through it makes it all worth it.

To have people tweeting me during the session saying “thank you for representing us!”, “thank you for being our voice”, “thank you for being there in person when we wish we could be, but are too sick”.

That made it all worth it.

I would pay $1000 to do it over again for those patients.

 

What Now?

So what’s the future of stem cells? I don’t know, your guess is as good as mine. But, I really hope that no one takes the ability away from us to tap into the unique healing ability each and every one of our bodies possess.

Given half a chance our bodies will heal themselves, by themselves. We just have to give them half a chance!

I leave you with a video of my 5 minute testimonial.

Together we can do this. I’m sure of it!

 

Also have to say THANK YOU to the Almanac for covering my story and for my alma mater West Virginia University for writing up a great article on me as well. The B&E post is my favorite one to date!

To check out all the public comments which were made, make sure to click here.

Wishing You A Pain Free Day!

Julie Cerrone | Spoonie, Autoimmune Warrior, Certified Holistic Health Coach, DoTerra Wellness Advocate, 200 RYT Trainee, Reiki 1, Nutrition Geek, ePatient Advocate, IT Consultant, Pittsburgh Based Practitioner Living the Chronic Life

Categories
AVN Platelets PsA Regenexx Regenexx Treatments

One Year Regenexx Celebration + Platelets Procedure

A year ago, I couldn’t walk without crutches.

A year ago, I was in so much pain that I truly was starting to believe that it’d never go away.

A year ago, I had to pace myself in everything that I did.

A year ago, I just wanted to be “normal” and walk… and perhaps have a day or two without pain.

 

A year has gone by and let me tell you – it flew.

I’ve had so many “wins” this past year, it makes my heart overflow with happiness when I think about it.

(if you want to start at the beginning of all these posts, click here!)

Avascular Necrosis Femur Bone Progress Healing with Stem Cells

I know this post is coming a bit late (ok, so my one year anniversary was in March and the last update I posted was months 10 & 11), but I’ve been having some trouble with my hands lately. My psoriatic arthritis has been acting up and, since I’m back to work now, I have had to save my activities for work! Never the less, I have great news to share.

https://www.instagram.com/p/BGP1iUDFFOA/?taken-by=itsjustabaddaynotlife

Stem Cell Update

Back when I was first searching for answers. . . every MRI seemed to get a little bit worse and worse. My bone started collapsing and I couldn't find a doctor who would touch me with a 10 foot pole!
Back when I was first searching for answers. . . every MRI seemed to get a little bit worse and worse. My bone started collapsing and I couldn’t find a doctor who would touch me with a 10 foot pole!

In my one year follow-up, my MRI has shown that I have about 50-60% regeneration of my bone. THAT MEANS ALMOST 60% OF MY BONE HAS REGENERATED PEOPLE?! HOW FREAKING AWESOME IS THAT.

Bone that so many health care professionals told me would never come back.

Bone that doctors told me I should just wait until it completely collapsed to have a knee replacement.

Bone that was dead.

I discussed with Dr. Pitts what my next course of action should be. In terms of my avascular necrosis, we agreed to leave it be for the time being. My biggest concern is future problems. I raised the concern that part of my bone is still dead – I wanted to see if he believed going in again would help regrow even more bone.

Of course it would help regrow more, but he believed that since I’m not having any symptoms, i.e. pain, swelling, burning, I can walk, etc, I should hold off. The option to inject more stem cells is always there, it’s not going anywhere. We agreed to wait another six months to a year to see how my bone progresses. You usually only see max benefit from the stem cell procedure about a year out, but that doesn’t mean that it can’t continue to help.

So for the time being, I’m leaving my avascular necrosis the way it is and continuing on with my life. Sure, there is still a part of my bone that is dead, but because I am not having any symptoms, and it’s not collapsing, I will leave it be.

Julie Croner | Psoriatic Arthritis Patient Leader on Instagram: “I had my @regenexx platelets injections today! Some of them I didn’t even feel and others I definitely felt being injected in my knee. This is my Doctor, Dr Lieber holding some of the platelets he injected. Using an ultrasound machine, he carefully injected in about 6 spots. My knee has been pretty stiff, and when I bend my knee is feels really “full” and uncomfortable. The inside of my knee is definitely sore and I have some pain. I came home and passssssssed out for 3 hours. I’m definitely planning on going back to sleep here soon. Sleep is how our bodies heal! He mentioned I may need my crutch tomorrow because my knee will swell up and will be stiff. So we’ll see what tomorrow brings! 👍🏼THANK YOU for all your positive thoughts today! 🙌🏼 #Regenexx #plateletrichplasma #platelets”

149 likes, 20 comments – itsjustabaddaynotlife on June 16, 2016: “I had my @regenexx platelets injections today! Some of them I didn’t even feel and others I definitely felt being injected in my knee. Th…”.

Platelets Treatment

I did raise concern about a clicking and catching that my knee has going on. It’s not a new issue, it’s been there for a while. Dr. Pitts said that I should have an orthopedic look at it. He would have looked at it, but he is in Colorado and I am in Pittsburgh!

Since we have a local Regenexx office here in Pittsburgh,  I made an appointment with Dr. Lieber. Way back when, I had gone to this office, but they did not do the bone procedure that I needed done at that time. They currently now offer it as an option and are doing some miraculous work here in the Pittsburgh area.

If you would like more information about them, head to Rehabilitation And Pain Specialists website. They also do free seminars around the area – you should attend one if you are interested!

I went to Dr. Lieber and, after looking at my MRI and examining my knee, he agreed that I should get a platelets procedure done. Why? Because my patella, a.k.a. my kneecap, is not tracking correctly. Using my own body’s healing mechanism, I can help strengthen the tendons and ligaments on the inside of my knee, which will then pull my kneecap to track correctly.

This isn’t a new issue, I’ve had many different braces throughout my life, and also gone to physical therapy many times, for this problem. Even just a few years back, I had a doctor put me in a brace for this exact issue.

What is the platelets treatment? (click here to watch a cute little overview video!)

Basically, Dr. Lieber would take my blood and spin it down to isolate the platelets. With those platelets, he would create the Regenexx super rich plasma injections to be injected into my knee. With exercise and physical therapy, those platelets will then help restore strength in the medial part of my knee.

I will be blogging on Rehabilitation And Pain Specialist’s blog about my procedure. Here are two videos I posted on my facebook page. I’ll update this post with a link once I publish my posts on the RAPS blog!

 Day of the Blood Draw:

I’m so mad at myself because the video I took on the day of didn’t save on my phone and I lost it! 🙁

Day After The Treatment:

 

My Thoughts On Stem Cell Procedures

All in all, I’m extremely, extremely, extremely happy about my stem cell procedure outcome thus far.

Over the last year, I have met many other patients who have had Regenexx stem cell procedures. I’ve also met others who have tried other stem cell procedures/treatments, i.e. placenta injections, fat injections, etc.

And I will tell you this.

The patients who are using their own stem cells are getting above and beyond results.

Patients who are using placenta or embryonic stem cell injections, are having mixed results. Most of those mixed results being negative.

There is a lot of research out there that shows that these syringes of “stem cells” are not helpful because they don’t include any LIVE stem cells. Stem cells cannot live outside of the body for a long period of time.That’s why with a Regenexx procedure they’re injected back in within the same day to ensure that they stay alive and active!

Here are 3 different posts I’d suggest you check out: Lowering The Stem Cell Bar, Stem Cells Pros & Cons More Scams, & Amniotic Stem Cell Therapy.

These injections do include human growth factors within them, but that’s about it. Therefore, they are costing you are a pretty penny for something that you can get from just doing a PRP or platelets injection. I urge you to do a lot of research before you figure out your best option.

I will actually be speaking at a FDA hearing in September on the topic of stem cell procedures. I will be one of MANY there telling their stories. The hearing was supposed to have been this past fall, but because they had an overwhelming number of people who wanted to speak (over 600!) they moved it to a bigger location! I’m afraid that all of these doctors who are now offering “stem cell treatments” will ruin it for the rest of us. We NEED the FDA to realize that using our own stem cells is the most beneficial way to go about it and that we can’t lose access to our own stem cells.

 

My Overall Experience

I wholeheartedly believe in the Regenexx procedures. I would (and do) suggest it to anyone who has an orthopedic condition. Your only option is NOT surgery. There are many other alternatives out there that can help you and can even give you a better result.

I know that my Regenexx stem cell procedure was done because of avascular necrosis in my femur, but that’s not the only condition it can help. The majority of the Rehabilitation and Pain Specialist’s patients are older folks who are looking for alternatives to knee replacements.

My friend Joe (check out his blog here) said it perfectly. It’s like if you have a religious experience or something that really moves you. You feel like you need to tell the entire world about it because everyone should experience it.

That’s exactly how I feel about this procedure.

It’s helped me get my life back and so much more!

I’ll be forever grateful.

 

Wishing You A Pain Free Day!

Julie Cerrone | Spoonie, Autoimmune Warrior, Certified Holistic Health Coach, DoTerra Wellness Advocate, 200 RYT Trainee, Reiki 1, Nutrition Geek, ePatient Advocate, IT Consultant, Pittsburgh Based Practitioner Living the Chronic Life

 

 

 

 

 

10 Ways I Got Ready For My Stem Cell Regenexx Procedure for AVN/ON of my Femur. Avascular Necrosis / Osteonecrosis | It's Just A Bad Day | AVN Knee, Psoriatic Arthritis, Complex Regional Pain Syndrome

Looking for more Regenexx related posts?

Procedure:

Want to know how I found the procedure? There’s a post for that 😉

Day 1: Did you miss my previous post about my prolotherapy injections? Catch up here!

Day 2 & 3: Want to know more about when I had my blood drawn for my injections? Read this one!

Day 4 – 7: Interested in how the procedure went? Click here!

Day 8: Want to read about the last day of the whole process and my journey home? This is the post for you!

Monthly Recovery Posts:

Month 1: 5 tips from my post 1 month Regenexx recovery right here 😉

Month 2: In my 2 month follow up, I talk about 3 noticeable differences I’d identified!

Month 3: 3 month follow up and 3 things I’m grateful for.

Month 4: 4 months post Regenexx I’ve been caught saying ‘this is the first time in a long time’ A LOT!

Month 5: 10 NEW things I did 5 months post Regenexx!!

Month 6 & 7: MRI update on how things are regenerating and how I’m doing without my biologic Humira

Month 8 & 9: Spent 3 Christmases on crutches and it feels DAMN GOOD to be crutchless this year!

Month 10 & 11: Back to living a normal life & celebrating things I haven’t done in YEARS!

One Year: One year celebration and update on getting a platelets treatment for a different problem!

One Year + 6 Months: I traveled to the NIH to speak at an FDA hearing regarding regulations and guidelines on stem cells. Watch my testimony!

Two Years: Celebrating 2 years of a mobile and pain-free life!

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Categories
AVN It's Just A Bad Day Regenexx Regenexx

Regenexx Months 10 & 11 Update

I’ll be honest, I haven’t written an update because I’ve just been going through the motions of daily life and haven’t felt like anything worthwhile had happened to update you on in terms of my recovery.

BUT, then it hit me.

Regenexx Update Months 10 & 11 | avascular necrosis _ osteonecrosis stem cell procedureThat right there is something to celebrate!!!

I’m living such a normal life that I’ve been having the conversations with my disability case manager to figure out a transition process off of disability (at least back to part-time work). With that comes a shit ton of emotions (and a whole other blog post).

But, in addition to being able to resume a relatively “normal life”, a few things have happened that I’d like to take time to celebrate.

 

Get My Butt Moving

So, back in the summer I had to do PT to get my knee into a state that it was fully functional and allowed the stem cells to thrive. I’d go to PT twice a week, doing water and then towards the end land and water. I also would go to yoga a few times a week.

I was working out a lot, but because I just looked at it as part of my recovery process, I didn’t really think about it.

It wasn’t until December rolled around and I realized I was gaining weight (NOT because of the holidays), but because my activities severely dropped. I hadn’t NOT been working out (I mean, I teach yoga so I’m definitely active), but yoga + all my PT was giving me a great workout that I wasn’t even thinking about.

I realized I needed to do something about this since I felt like I was starting to slack on the movement front.

In January, I started back on the elliptical, consistently. I realized that the only thing holding me back from using this machine was ME. Over the past few months, I had proven to myself that my knee was stable, so I couldn’t use that as an excuse. I realized I was just doing the typical “I don’t wanna work out” thing by making up excuses about how I didn’t want to over work my knee. While, 6 months prior in PT, I had been doing SO much more with it.

So I hoped back on the elliptical and I gotta tell you. Some days, I hate getting on that machine (due to pure laziness reasons), but I haven’t had one day where my knee has bothered me because of getting on the machine. Sometimes my energy is low, or my joints are stiff because of my arthritis, but, to date, I haven’t had a problem with AVN pain because of the elliptical.

Now, let’s keep this up Julie!

https://www.instagram.com/p/BALZ8uHFFOP/?taken-by=itsjustabaddaynotlife

Stop Holding Back

I started realizing that I put restrictions on myself.

Just like the elliptical, I’ve held myself back thinking something would be “too much” or “I have to take it easy”. When in reality, that’s so not the true. Sure, with my psoriatic arthritis, I will ALWAYS have to pace myself. This is something that won’t change, BUT I have to remember that, in terms of structurally and AVN wise, I need to stop putting limits on myself.

Back in December, I still took my crutch to the Steelers games with me. I truly had been using my crutch AS A CRUTCH. Literally and metaphorically. I realized I needed to STOP. I do not need this crutch. I don’t need it at all.

I’ve since put them away, out of sight, out of mind.

I refuse to pull them out now… Unless my situation would change in the future and I’d HAVE to use it. I’m done.

I AM DONE.

 

HUGE Traveling Win Times 2

Travel Win 1

June 2012, traveling to Pittsburgh, PA from Chattanooga, TN, through Atlanta, GA was the last time I had traveled without some kind of assistance. Sure, I had a limp something fierce, and was in ridiculous pain that last journey, but I walked it, pulled my own bag and didn’t have to ask for help.

WALKING to my gate through the Chicago Airport - a huge win for my avascular necrosis! | itsjustabadday.comSince then, I’ve had to adjust my traveling a bit. Prior to disability, I had my airport routine down pat. I knew when to leave my house with enough time to slide through security, grab a tea and walk right onto my plane without having to have much downtime. Having to travel with crutches, or mobility issues, definitely threw a wrench in my good old routine. But, over the past few years, I’ve gotten used to a new routine. (Check out my posts I’ve written about chronic illness travel stress and traveling with disabilities lessons learned)

I’ve come to rely on having someone drop me off at the door, airport staff to help me, wheel me from gate to gate, take care of my bag, etc. (Here I even wrote an update on how excited I was to be traveling with one crutch so I could wheel my own bag!)
BUT, on February 29th, 2016 I successfully packed my car, drove myself to the airport, parked in long-term parking, walked to check in, checked my bag (I figured it would make my first trip back walking a little less strenuous), waited in the security line, took the tram myself, got off and went up the escalator (not the elevator) and walked to my gate.

Then! From my gate in Chicago, I walked from the G terminal to the last gate in H.

And furthermore, once I arrived in NYC, I got off the plane, walked down to baggage claim, grabbed my bag,waited in line for a taxi and made it to my hotel in the city.

ALL LIKE A NORMAL, FUNCTIONING 30 YEAR OLD!!!!

Honestly, people in the airport probably thought I was crazy. I had such a smile on my face all day. It was so, so, so, soooooooooo great. I didn’t take it for granted for one millisecond. Not one. I can’t tell you how many times I said “Thank you!!” in my head during that day. Honestly, it brings tears to my eyes.

As I was walking down the terminal in Chicago, I passed by a place where I’ve sat numerous times on a Thursday night eating dinner. I pictured myself, 5-6 years younger, sitting there eating some Chinese food. How I couldn’t have possibly fathomed how my life would take such a drastic turn and how different it would in the future. How simply walking down the corridor of that terminal meant so much to me, something I’d done so many times before, but didn’t give a second thought to before. As I was boarding my flights, I purposely made myself be one of the last passengers onboard. For the last few years, I’ve always made sure to be one of the first ones on so that I had time and room to maneuver my way onto the plane and back to my seat. Making sure to take my credit cards and important items out of my crutch bag, before handing them over to the flight attendants to stow or compressing them to ensure they fit in the overhead compartment. This time I had to just worry about my bag and my coat.

Honestly, I kept feeling like I was missing something. Did I have everything?Successful trip BY MY SELF to NYC. When you live with a chronic condition and have to use crutches to get around, traveling without having mobility issues is a huge huge huge WIN | itsjustabadday.com

Something felt missing… And rightfully so.

 

Travel Win 2

My last trip up to NYC was in November 2015 – just a few short months prior to this trip. (Read about it here) And at that time, I took 1 crutch and walked A LOT around the city. Well, I guess I should say “a lot” is relative. It was a lot to me (according to my iPhone, about 7-9k steps). By the end of the day, my knee didn’t hurt, but my feet and ankles were pretty darn swollen.

This trip up to NYC I walked SO MUCH. And guess what? Without a crutch! And guess what else what? No pain! My feet and ankles experienced no swelling, but I will say both of my knees were a LITTLE bit swollen at the end of the day. I attribute this to my psoriatic arthritis, not my AVN. It was the first time since April 2012, that I took the subway myself, walked down SoHo myself, and felt like a typical person just walking down the streets of Manhattan. I can’t tell you how excited this made me! I love being in the city, and feeling the freedom I once had, made it even more exciting.

 

I’ve Come SO Far

To arrive at where I am today, there has been so many things which have occurred.I can’t even tell you how full of gratitude my heart is. For the prayers, for the well wishes, for the help, the support, the love.

And it’s been a battle on my side as well. I’d be lying if I told you I didn’t think about walking and not using a crutch everyday.

Every single time I walk up the steps, EVERY SINGLE TIME (I’m not exaggerating), I think about how grateful I am to walk up the steps and not have to hang on or take one step at a time. Walking up the middle of the steps, in full control, is such an amazing feeling. I honestly can’t even explain it. I feel it in my heart, every. single. time. And honestly, I hope I never stop thinking that or feeling that.

There are so many things that we take for granted on a daily basis that we don’t realize until they’re taken away from us. I know I take so many things for granted, but when I’m mindful and am truly living in the moment, I remember to say thank you and take advantage of what I have.

My life is so different from it was just one year ago. Reading this post, I remember taking my last Humira injection. I was nervous about what would happen, but had this inherited feeling that everything was going to be ok and work out as it should be.

I can’t wait for my next MRI to see if there has been any other progress in my bone. Not that 40% isn’t amazing – because holy shit, 40% regrowth was mind-blowing and helped me get a more stable knee, but I can’t help but be curious!

Next month will be 1 year since I had my Regenexx procedure. ONE FREAKING YEAR!!!! Time flies when you’re having fun and are not in pain! I can’t even believe it’s been one year. I still feel like I’m looking for my answer or I’m waiting for the procedure to occur. I’m eternally grateful to the Centeno Schultz clinic, Dr. Pitts and the Regenexx procedure for helping me get my life back. FOREVER grateful.

 

Wishing You A Pain Free Day!

Julie Cerrone | Spoonie, Autoimmune Warrior, Certified Holistic Health Coach, DoTerra Wellness Advocate, 200 RYT Trainee, Reiki 1, Nutrition Geek, ePatient Advocate, IT Consultant, Pittsburgh Based Practitioner Living the Chronic Life

 

 

 

 

 

10 Ways I Got Ready For My Stem Cell Regenexx Procedure for AVN/ON of my Femur. Avascular Necrosis / Osteonecrosis | It's Just A Bad Day | AVN Knee, Psoriatic Arthritis, Complex Regional Pain Syndrome

 

Looking for more Regenexx related posts?

Procedure:

Want to know how I found the procedure? There’s a post for that 😉

Day 1: Did you miss my previous post about my prolotherapy injections? Catch up here!

Day 2 & 3: Want to know more about when I had my blood drawn for my injections? Read this one!

Day 4 – 7: Interested in how the procedure went? Click here!

Day 8: Want to read about the last day of the whole process and my journey home? This is the post for you!

Monthly Recovery Posts:

Month 1: 5 tips from my post 1 month Regenexx recovery right here 😉

Month 2: In my 2 month follow up, I talk about 3 noticeable differences I’d identified!

Month 3: 3 month follow up and 3 things I’m grateful for.

Month 4: 4 months post Regenexx I’ve been caught saying ‘this is the first time in a long time’ A LOT!

Month 5: 10 NEW things I did 5 months post Regenexx!!

Month 6 & 7: MRI update on how things are regenerating and how I’m doing without my biologic Humira

Month 8 & 9: Spent 3 Christmases on crutches and it feels DAMN GOOD to be crutchless this year!

Month 10 & 11: Back to living a normal life & celebrating things I haven’t done in YEARS!

One Year: One year celebration and update on getting a platelets treatment for a different problem!

One Year + 6 Months: I traveled to the NIH to speak at an FDA hearing regarding regulations and guidelines on stem cells. Watch my testimony!

Two Years: Celebrating 2 years of a mobile and pain-free life!

Save

Categories
AVN It's Just A Bad Day Regenexx

My Christmas Wish Was To Walk

Sure, I’m pretty much a grown adult, but when it comes to the Holiday season I get so excited and basically revert back to a 5-year-old. Christmas 2012 was an extremely painful Christmas for me, yet, I still kept up my holiday spirit and tried to enjoy the holiday the best I could. That year, I remember asking Santa for a new body. My body was so inflamed, I was in so much pain and was just plain miserable.

My Christmas Wish This Year Was To Walk. Regenexx Video on how their stem cell procedure helped my AVN in my femur and allowed me to get off my crutches for good! itsjustabadday.comChristmas 2013 I asked Santa for pretty much the same thing, but in Christmas 2014 I asked Santa to make sure the Regenexx procedure I would be receiving in the new year would be the solution to all of my problems! Oh, and I also decked my crutches out in Christmas lights (check it out here) 😉

This Christmas, Santa didn’t receive a letter like that at all.

Over the years, through diet and lifestyle changes, I’ve reigned in my inflammation, taken the upper hand of my autoimmunity and (so far) regenerated 40% of my femur bone. I’ve put in a lot of hard work. I spent 6 months bed ridden, 3.5 years on crutches, at one point I was spending 5-6 days in bed because of bone crushing fatigue and malaise and my body was fighting itself so much there were days I thought I’d never see the end. Not to mention, on top of the psoriatic arthritis, complex regional pain syndrome, anxiety, depression and avascular necrosis, I was dealt a melanoma diagnosis as well!

Over the past 3.5 years I’ve basically completed a rebirth of my entire life. I’ve worked tirelessly to find ways to help myself, I’ve tried to learn as much as I could about all of my conditions, I’ve connected with others in similar situations and I’ve made sure to stack my team with the best of the best.

When it came to combating my AVN, Dr. Charles Glueck helped me realize WHY I had AVN (and helped me revive one section of my AVN that HAD NOT collapsed yet) and Dr. Pitts at the Centeno-Schultz clinic helped me combat the rest of my AVN.

So how did my AVN journey begin?

Well, first it started by receiving an AVN diagnosis in December 2012.

Then, after spending years on crutches, seeing basically every orthopedic in the tri-state area, and being told countless times that no one could offer me any hope, I found Regenexx.

I immediately contacted the offices and quickly made an appointment to see the Regenexx doctor here in Pittsburgh. Unfortunately, at that time, the office wasn’t offering the bone stem cell procedure that I needed. They were only doing the tendons and ligament procedures of Regenexx. Because I felt like this was definitely the solution I needed, I consulted with a doctor in New Jersey who did the procedure and also talked to Dr. Schultz at their headquarters clinic in Colorado. I ended up scheduling my procedure with the doc who was doing the most of them at the time, Dr. Pitts. All of this happened during the Fall of 2015, but I had to wait a few months to get it done because of some family obligations. I was annoyed at first, but I truly believe everything occurs in the perfect timing.  (I even wrote a post about that perfect time here!)

March 2015, my parents and I traveled out to Colorado to have the Regenexx stem cell procedure done. It was such a surreal experience. (Want to read about the whole procedure? Start at this post and click your way through the posts. I’ve posted about each phase of the procedure, like my Day 1 post, and my recovery, starting with Post Regenexx Month 1!)

So, why am I a huge proponent of The Centeno-Schultz clinic and their Regenexx procedures?

Well, for starters, for the first time in 3.5 + years I’m off pains meds, I’m not on crutches, I’m not in constant pain, I’m walking and getting stronger every day . . . OH ANDDDDDD I’m getting my life back. Dr. Schultz and Dr. Pitts were the first doctors who gave me HOPE. Hope that there was a solution to my problem. Hope that I’d get my life back. The hope that I’d been so frantically searching for through every disappointing doctors appointment I had had during my disability leave.

I truly felt like these doctors were in complete alignment to my healing philosophy. Prior to seeing them, I had changed my diet, my lifestyle, my thinking – everything. I truly believe that in order to achieve complete, whole healing, you must attack your life as a whole. Mind, body and spirit. Dr. Pitts so understood that and I really appreciated and respected that about him.

The month prior to my procedure I decided to take the plunge on an endeavor I had been talking about for years. Yoga Teacher Training. Some thought I was crazy. I mean, I’d been on crutches for 3+ years, I was getting a procedure done the next month . . . how would I be able to do it? My program ran from March to November 2015 and I truly believed it helped bring a whole other level of healing to my procedure. Why is that you may ask?

My Christmas Wish This Year Was To Walk. Regenexx Video on how their stem cell procedure helped my AVN in my femur and allowed me to get off my crutches for good! itsjustabadday.comYoga is the epitome of mind, body and spirit. Not only did I learn (or tried to learn haha!) how to be a great teacher, but it truly forced me to focus on ME physically, mentally and spiritually. It also gave me an amazing community to celebrate the wins of my procedure with. Don’t get me wrong, I have the biggest cheer squad at home, but it was nice to have a group of yogis who were sending a ton of positive vibes my way too.

Regenexx has shot some awesome videos of past patients who are thriving because of the procedure and I was approached to shoot one of my own. I WAS SO FREAKING EXCITED!!!!!! I started this blog because I wanted to get my story out there, I wanted to let other patients know what I tried, what worked, what didn’t work and offer suggestions on routes to try. But, above all, I wanted other patients to know that they weren’t alone – I was struggling and there are so many others out there struggling with the same thing. (Are you one of those patients? Check out this AVN Facebook group!)

So needless to say, I jumped at the opportunity and they sent an awesome director from California, Doug Orchard, to shoot the video on me. We spent the morning running around Pittsburgh, shooting me in different yoga poses in different locations. (Huge thanks to my Mom who drove us around and let us just jump in and out of her car!) Honestly, it couldn’t have been more perfect. Most would think that shooting yoga poses, at 7am, in dreary December weather would be less than perfect, but I truly couldn’t have been happier! Christmas has always been so special to me. There truly are 2 sure-fire ways to get me in a good mood- Celine Dion Music and ANYTHING Christmas. As we ran around the city, shooting this video, there were Christmas trees, Christmas lights and Christmas music playing all around. And the best part? I WASN’T ON CRUTCHES! I WAS WALKING!!!!! AND I WASN’T IN PAIN!!!!!!!!!!!!!!!!!!!!!!!

The whole experience was so surreal. I feel so honored to have been given the chance to shoot the video and I’m SO grateful to the Doctors at Centeno-Schultz for creating a procedure that has given me my life back.

If I could tell any patient one piece of advice, I’d say it’s SO important to empower yourself. Get out there and do research on your condition. Approach your condition(s) with love, focus on your wellness and do everything in your power to help jump-start your healing process.

Don’t ever accept less than you believe you deserve.

Don’t ever stop until you hear answers you want to hear.

DON’T EVER GIVE UP!

Not only am I WALKING and ROCKING around my Christmas tree this year, but the Centeno-Schultz Clinic wrote this blog post about me and published this amazing video. (I got a kick out of the line about my Dad haha!!)

Take a moment to watch the video below. It brings tears to my eyes when I watch it. I couldn’t have turned out any better.

When 2015 started, I knew in my heart it would be my best year yet. It’s with such a grateful and blessed heart that I end this year of my life on such a huge high.

This year my incredibly supportive family and I are celebrating a year of truly astonishing wins.

It truly is a very, merry Christmas this year. #thankYouPapPap

Wishing You A Pain Free Day!

Julie Cerrone | Spoonie, Autoimmune Warrior, Certified Holistic Health Coach, DoTerra Wellness Advocate, 200 RYT Trainee, Reiki 1, Nutrition Geek, ePatient Advocate, IT Consultant, Pittsburgh Based Practitioner Living the Chronic Life

 

 

 

 

My Christmas Wish This Year Was To Walk. Regenexx Video on how their stem cell procedure helped my AVN in my femur and allowed me to get off my crutches for good! itsjustabadday.com

Categories
AVN It's Just A Bad Day Regenexx Regenexx

Post Regenexx – 8 / 9 Months Check In!

MarchAprilMayJuneJulyAugustSeptember, October, November, December . . . This year is FLYING BY. Yesterday was a bit of an emotional day for me because December 17th, 2012 was when I first received my AVN diagnosis. There were a few Christmas since then where I felt very hopeless, scared and fearful for the future – but not anymore!!! NOT AFTER THIS YEAR!!!!!

Opening Night of the Rockets Christmas Spectacular November 2015
Opening Night of the Rockets Christmas Spectacular November 2015

 

I’ve continued to progress wonderfully. For the first time in 4 years, I can go to yoga and do pretty much everything. Yesterday I was in class and, during our vinyasa flow, we completed a series of balancing poses. Prior to my stem cell procedure, I would have been nervous to attempt them. I’d do the poses on my right side and then would awkwardly stand there, trying to look like I was doing something else, while everybody did the left side. Once I had my Regenexx procedure, I’d attempt to do my left side lightly. I’d put a little more balance on it, hold it for a few seconds and then come out of the pose. But now, I don’t even think twice about what side is which! And oddly enough, to which I don’t understand at all, I actually have better balance on my left leg (the AVN side) than I do with my right leg (my “good” leg). I’m not complaining though!!!!!

Downtown Pittsburgh Light Up Night 2015
Enjoying Light Up Night 2015 Sans Crutches!!!!!

 

In November, I went up to New York City for a National Psoriasis Foundation and Leo Pharmaceuticals blogger summit. My parents ended up going with me and we took a few days to do a bunch of sightseeing. It was a lot of fun, but I can’t lie I was a little nervous because I knew we’d be doing a ton of walking. I took my 1 crutch because I figured it would be good to have some support while I was walking. Well, long story short, the trip was awesome, I walked a ton and my crutch proved to be more annoying than helpful. I felt like I was basically dragging my crutch along, more than it was being supportive. By the end of the day my ankles and lower legs were SUPER swollen, but my knee NEVER HURT. NOT EVEN ONCE. I think the swelling was because 1) my body was like WTF Julie, you haven’t walked this much since like Winter of 2012 and 2) my psoriatic arthritis probably had something to do with it.

Enjoying My FIRST Wedding since June 2012 Sans Crutches!
Enjoying My FIRST Wedding since June 2012 Sans Crutches!

 

Back when I first was diagnosed with AVN, Pittsburgh started to have a little European Christmas Market downtown in Market Square. I had really wanted to go see it, but barely had enough energy to go up a flight of stairs so I didn’t make it down there. The next Christmas, 2013, I was doing a bit better, but still didn’t have the stamina to go down and see it. Last Christmas, I probably could have crutched my way around it, but I didn’t end up going. BUT THIS YEAR, not only did I get to go down and see if, but I WALKED AROUND CRUTCHLESS!!!!

Amazing Director Doug Orchard Shooting Me And My Regenexx Story On Top of Mt Washington in Pittsburgh, PA December 2015
Amazing Director Doug Orchard Shooting Me And My Regenexx Story On Top of Mt Washington in Pittsburgh, PA December 2015

 

June 2012 one of my best friends got married. It was the first wedding I attended where I couldn’t dance and really enjoy myself. I still had fun, but I wanted to be out on the dance floor. As the years went on, every wedding I’d go to I’d promise myself “Ok, THIS is the last wedding you won’t be able to dance at.” But it always seemed there was another wedding I’d go to and I couldn’t dance…. BUT, this November one of my high school girlfriend got married and guess what. I TOTALLY DANCED AT HER WEDDING!!!!!!!!!!!!!!!! The best part? The next day my knee wasn’t even sore at all! My hips and feet were sore, but not my knee!

 

I’m really excited to announce that Regenexx has filmed a short video on me and my recovery. The beginning of December they sent an awesome director, Doug Orchard, out to film me about my knee. It was SO SO SOOOOO much fun. Doug took some amazing shots so I honestly cannot wait to see it. I’m anxiously awaiting it’s release and will absolutely be posting it once it’s finished. So stay tuned!

Julie Croner | Psoriatic Arthritis Patient Leader on Instagram: “These might just be Christmas lights to you, but to me they have a lot of meaning. June – November 2012 I was on and off crutches for 2 surgeries and lots of complications. November 2012 I started using my crutches full time and December 2012 is when I received my AVN diagnosis. That Christmas I never could have imagined how much my life would change. Christmas 2013 I couldn’t believe I was still on crutches. People joked about how I should put lights on them since I love Christmas so much. Then Christmas 2014 rolled around and guess what . . . Was still on crutches. I figured third times a charm, so I went out and bought battery operated lights and lit up my crutches. I knew in my heart it’d be the last Christmas I’d be on crutches. Now, Christmas 2015 I have no crutches, low pain and am doing so well. I didn’t even realize I still had these lights, but I found them the other day. Light up crutches are fun, but I’m really glad not to have them this year. Sending up soooo many prayers of gratitude for NOT having to use these lights again this year 🙌🏼 Wonder what next Christmas will bring?! #spoonie #chroniclife”

54 likes, 9 comments – itsjustabaddaynotlife on December 14, 2015: “These might just be Christmas lights to you, but to me they have a lot of meaning. June – November 2012 I was on and off crutches for 2 s…”.

As the months go by, I get stronger and stronger. I’ve actually started to become accustomed to pain free days (SAY WHAT?!) and am truly working to get my life back. Last year I had my crutches all decked out in Christmas lights (click the picture above, or this link, to be taken to my instagram page to learn more about those!) , but this year I’m happy to report that it’s the first Christmas since 2012 that I’ll happily be WALKING and ROCKING around my Christmas tree 😉

Want to know more or catch up on past posts? Check out the links below.

Wishing You A Pain Free Day!

Julie Cerrone | Spoonie, Autoimmune Warrior, Certified Holistic Health Coach, DoTerra Wellness Advocate, 200 RYT Trainee, Reiki 1, Nutrition Geek, ePatient Advocate, IT Consultant, Pittsburgh Based Practitioner Living the Chronic Life

 

 

 

 

10 Ways I Got Ready For My Stem Cell Regenexx Procedure for AVN/ON of my Femur. Avascular Necrosis / Osteonecrosis | It's Just A Bad Day | AVN Knee, Psoriatic Arthritis, Complex Regional Pain Syndrome

 

Looking for more Regenexx related posts?

Procedure:

Want to know how I found the procedure? There’s a post for that 😉

Day 1: Did you miss my previous post about my prolotherapy injections? Catch up here!

Day 2 & 3: Want to know more about when I had my blood drawn for my injections? Read this one!

Day 4 – 7: Interested in how the procedure went? Click here!

Day 8: Want to read about the last day of the whole process and my journey home? This is the post for you!

Monthly Recovery Posts:

Month 1: 5 tips from my post 1 month Regenexx recovery right here 😉

Month 2: In my 2 month follow up, I talk about 3 noticeable differences I’d identified!

Month 3: 3 month follow up and 3 things I’m grateful for.

Month 4: 4 months post Regenexx I’ve been caught saying ‘this is the first time in a long time’ A LOT!

Month 5: 10 NEW things I did 5 months post Regenexx!!

Month 6 & 7: MRI update on how things are regenerating and how I’m doing without my biologic Humira

Month 8 & 9: Spent 3 Christmases on crutches and it feels DAMN GOOD to be crutchless this year!

Month 10 & 11: Back to living a normal life & celebrating things I haven’t done in YEARS!

One Year: One year celebration and update on getting a platelets treatment for a different problem!

One Year + 6 Months: I traveled to the NIH to speak at an FDA hearing regarding regulations and guidelines on stem cells. Watch my testimony!

Two Years: Celebrating 2 years of a mobile and pain-free life!

Save