My LONG psoriatic arthritis story summarized: In 5th grade, I had my first knee surgery. My meniscus was ripped, flipped and separated from the bone. My orthopedic surgeon back then said it was most likely something I was born with and I injured it from dance and softball. But, from that point on it seemed like I always had issues with my knee. Year in and year out, I was in therapy for knee pain, some problem or in the OR for a surgery. In middle school, a rheumatologist said that I “might” have psoriatic arthritis, but since I wasn’t even through puberty yet he didn’t want to put me on heavy-duty drugs. Since there was no definitive test, he wasn’t 100% positive. This was the mid-90’s and biologics had just come out as well. I’m not even sure they were indicated for juvenile use yet!
Fast forward to when I was 27 years old. I was working and started having problems again with my SI joint and knee. Through the years, I had just become accustomed to these things. But, this time it got to the point where my knee swelled up so much it locked. I ended up having 2 back to back surgeries that ultimately resulted in a week-long hospital stay. It was during that hospital stay that I was “officially” diagnosed with psoriatic arthritis.
So if you’re being technical, I was diagnosed in 2012. But, if we’re honest, I’ve had psoriatic arthritis since I was little. I just didn’t have a name for all of the different symptoms I was experiencing. Now it’s SO extremely easy to look back and connect the dots. All those surgeries I had – meniscus, baker’s cyst, plica (to name a few). All those aches and pains. All the other “one-off issues” like sciatica. They all point to psoriatic arthritis and chronic inflammation.
In 2016 I had the chance to present my patient case study at Stanford Medicine X. Watch my “Patient case study – My data. My research. My results. How I used my own data to create a precision medicine approach to my autoimmunity” presentation replay here.
Through the years, I’ve picked up many different tools in my Psoriatic Arthritis toolbox. I started my blog a few years ago to connect with others who were going through similar situations. On top of writing in this blog, I also write for other online sources as well.
The following resources are posts and articles that I’ve written over the past few years. My hope is that you read as many as you like. Let this information help guide you to talk to your doctor, make informed decisions and to live your best life possible! And make sure to share them with your psoriatic friends as well. Sharing is caring 🙂
If you’d like to read the story of what led up to my 2012 – 2016 disability leave and me starting my blog, click here. All of the blogs link to one another and you’ll be able to go from one to another easily!
Managing My Psoriatic Arthritis
One of the best series I’ve done on my blog is “Managing My Psoriatic Arthritis”. This series was created after having been asked the question “Did an elimination diet help you manage my psoriatic arthritis?”.
Short answer – YES
Long answer – YES, but I’ve also done a lot of other things as well to help manage my condition. I focus on the following 5 areas to help manage my psoriatic arthritis.
I suggest you start with reading those posts.
Your Psoriatic Arthritis Healthcare Team
Not sure who should be on your healthcare team to manage your psoriatic arthritis? Check out these posts to help you decide.
Medication For Psoriatic Arthritis & Psoriasis
Here are the medications that I’ve taken for my psoriatic arthritis. The only one that’s not on the list is Vicodin. Apparently, I’ve not written about it? I’ve used it for pain management purposes.
- Starting Humira
- Stopping Humira for a procedure – “Humira Withdraw”
- Biologics For Autoimmunity & Humira Update
Supplements For Psoriatic Arthritis & Psoriasis
I truly believe in the power of supplements. I believe that they can help increase your medication’s efficacy and truly put you on the path to healing. Work with your own doctor’s to decide which are right for you. I’ve worked with functional medicine and natural doctors to come up with my plan.
Diet For Psoriatic Arthritis & Psoriasis
This is a topic near and dear to my heart. I truly think diet is an important tool that everyone MUST consider when they have a chronic condition. Here are just a FEW of the articles I’ve written through the years.
Managing Flare-Ups Of Psoriatic Arthritis & Psoriasis
There are so many ways to manage your symptoms and flare-ups. Here are posts directly related to how I manage mine.
Hand Pain & Stiffness
The Real Truth Of Flare-Ups
Living Live With Psoriatic Arthritis & Psoriasis
You truly can still live an amazing life with psoriatic disease! Don’t take my word for it, check out these posts.
Mindfulness & Meditation For Psoriatic Arthritis & Psoriasis
I really believe that being mindful and adding meditation to our days helps our bodies heal and relax. Here are my suggested resources for you!
Yoga For Psoriatic Arthritis & Psoriasis
I went from not even being able to put weight on my left leg for months to teaching yoga classes. We have to move at our own pace and honor our body. Modify your practice as you need to. I highly suggest hiring a personal yoga instructor at first to help you figure out modifications that will work for your body.
Loving Yourself With Psoriatic Arthritis & Psoriasis
You only get one body – so treat it kindly and love the crap out of it!
Posts To Share With Your Friends To Increase Awareness
Here are posts that you can easily share with your friends and family members to let them know what you’re going through. Sometimes explaining it to them isn’t the easiest!
Personal Story With Psoriatic Arthritis & Psoriasis
Here are a few posts of my own personal story for your reference.
Learn From Other’s Psoriatic Arthritis & Psoriasis Stories
I think learning from each other is so important. Check out these links and stories from other psoriatic arthritis and psoriasis patients living their best lives!
Wishing You A Pain Free Day!